My daughter Courtney and her friend (pictured above) have put this site together for me and I want to let them know how much I like it.  I do -- it is great.   

Courtney, you are a wonderful person to talk with.  You help me when I am upset, which I have been often since December.  Thank you for all that you have done. 

I am doing well, I am on Rilutek - helps slow progression (we hope), minocyline (sp) (for some infection), Effexor (for depression) and am trying Provigil for my fatigue.  I am still working full time.  I have a desk job, but it is not a stressful job like the one I had for the last 10 years.  I may reduce to 32 hours soon.  I would like to hear from others that are still working.  I have my good days and boy those pity parties!  They come once in awhile and usually when I am alone.  Although my symptoms aren't visible I have gotten a disabled parking permit.  I am hoping this helps with my energy. 

This morning I asked my son who lives at home to clean the house for me, and he was very kind but he had to work today, then go out to dinner tonight and then housesit for his sister.  Well you know about crying when not appropriate, I did it and I tried hard to tell him it was ALS not me -- I can handle a dirty house for a few more days.  He gave me one of those great hugs of his and I went off to work.  When I came home I saw smoke from our smoke stack and knew a fire was heating the house.  When I opened the door my house was clean.  Corey had gotten off early and came home and cleaned it for me.  Bless his heart. 

I will end this now.