Kathy's ALS Blog

My Journey Since Being Diagnosed with ALS




   I was diagnosed with ALS/Lou Gehrig's Disease
        in December 2005.  To read about my initial  
    diagnosis, 
please start by scrolling to the
                        bottom of this site.

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April Update

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This entry was posted on 4/13/2007 8:44 PM and is filed under uncategorized.


Message From Courtney -

It has been a while since we posted an update on how Mom is doing.  I thought I better just take care of it myself as she rarely gets on the computer anymore. 

She now has weakness in her right hand as well, so it is getting more and more difficult for her to write to communicate.  Her left leg is getting progressively weaker.  She isn’t really able to walk, besides transferring herself from her wheelchair to her “lift” recliner.  She is no longer able to eat, now relying completely on supplements through her feeding tube.  Her breathing is continuing to be troublesome; she uses her Bi-Pap machine some nights when is having particular difficulty.

Grandma Jo has been coming out to be with Mom Tuesday through Friday while Dad is at work.  She has friends and a wonderful neighbor who visit her on Monday and Friday (when she allows).  Even with her health issues, her privacy remains important to her and sometimes even with her struggles; she still treasures her time alone.

Mom and Dad went up to Woodinville last weekend and traded in their Volvo wagon for a conversion van that will transport Mom in her wheelchair.  It has all of the “bells and whistles”.  The van lowers to the ground to accommodate easy loading of the wheelchair.  This will make it much easier for her to go places.

Starting May 1, Dad will be off work full-time to stay home and help to care for Mom.  He has really been doing a great job.  Although not without struggles during transition, he has resumed so well many of the duties Mom has always taken care of.  He does the grocery shopping, arranges medical appointments and most importantly, helps take care of Mom’s daily needs. 

My parents have a wonderful neighbor who has been very helpful - from pitching in to sign off on medical supply deliveries to bringing wonderful meals over to Dad.  I was over there last week when he was enjoying barbecued ribs, asparagus and scalloped potatoes!  Their generosity is so inspiring.

Your continued support of Mom and all of us is deeply appreciated.

 

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Comments

    • 4/14/2007 7:07 PM Jeannie Norton wrote:
      Dear Kathy & Courtney... What a team you two are ... of course must include the wonderful support you're getting from the guys too! Kathy, you are truly an inspiration of hope and strength for all of us..and how blessed you are to have a Guardian Angel, Courtney, to be by your side. May God bless all of you during this tough journey.
      Love.... Jeannie & Ted Norton
      Reply to this
    • 4/17/2007 9:36 PM Cecilia wrote:
      Courtney -- You are a true angel. I can only pray for family and hope you will let me know if I can do anything. And, pray that if I become ill in my lifetime that my daughters will be as generous, kind and caring as you. My thoughts are always with you and your family.
      Reply to this
    • 4/22/2007 9:56 AM Karyn Norris wrote:
      I am continually praying for you, Kathy, and your wonderful family. I have a lot of fond memories of growing up with Courtney and seeing you at all of our events. Thank you for being such an inspiration! God Bless you and your family.
      Reply to this
    • 4/26/2007 7:44 PM Jody Pyatt wrote:
      Dear Kathy,
      I think about you often. We made it through Pat's Mom's hospital stay. They say they got all the cancer, but she lost nearly a quarter of her tongue. I've been waiting for you to text that your ready for visitors. We would love to come say Hi! and pet the animals.
      Thinking of you often. love, Jody
      Reply to this
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