Kathy's ALS Blog

My Journey Since Being Diagnosed with ALS




   I was diagnosed with ALS/Lou Gehrig's Disease
        in December 2005.  To read about my initial  
    diagnosis, please start by scrolling to the
                        bottom of this site.

 Feel free to submit a comment to me
whenever you visit this page.

 

       Thanks for stopping by!

April Medical Appointment

Print the article

This entry was posted on 4/26/2007 7:37 PM and is filed under uncategorized.


Update From Courtney -

 

Dad, Keri and I went with Mom to her ALS Clinic at Virginia Mason in Seattle.  It was a long appointment and very tiring for Mom.  Her breathing is down to 17 percent from 37 percent in January.  Fortunately, she hasn't lost any more weight.  Dr. Ravits was surprised by her progression just since January.  He ordered hospice  for Mom beginning immediately.  This was very hard on all of us; however, we are thankful for the support to Mom.  Dad is off work full-time starting next week and the help of hospice and respite care through the ALS Association is a tremendous blessing.  If you ever want to come out for a visit, just give Dad a call and he’ll let you know if it is a good time.  Again, thank you for your continued thoughts and prayers.  I will keep this site updated more regularly.

 

What did you think of this article?




Trackbacks
Trackback specific URL for this entry
  • No trackbacks exist for this entry.
Comments
    Display comments as (Linear | Threaded)

    • 4/26/2007 8:02 PM Jeannie Norton wrote:
      Am so glad Hospice is there to be with all of you. They are incredible and provide such an invaluable service and support during these difficult times. Know that you all are in our thoughts and prayers. So difficult to know what to say or do, but only to let you know our arms are outstretched and we hope you can feel our hugs of love and blessings.
      God Bless You Always!
      Jeannie & Ted Norton
      Reply to this
    • 5/3/2007 2:57 PM Sandy Prock wrote:
      Dear Courtney,

      Talea reassured me if I wrote to you it would not be an intrusion. I worried about that.

      I want to introduce myself to you Courtney. I am Sandy Prock, Brads sister and your aunt.

      I have wanted to contact you since Talea told me she had a sister when my husband and I were visiting in Olympia and attending Jordan's senior high football game.

      I hope this is not a bad time, but I have been keeping up with your updates and I was so sorry to hear your mother is not doing to well in your last post. My prayers are with you, your mother and family.

      If you feel like writing when you have time, my email address is sandyprock@yahoo.com. I know you are busy now with your mom and all. I just wanted to touch base.

      With love, Sandy
      Reply to this
    • 5/8/2007 7:59 PM cindy m wrote:
      Dear Kathy - i think of you every day. i am so sorry. ALS sucks! how can i help? what good am i? crap - this is about you. i don't even know what to say. nothing will be enough. too little, too late. scared. please forgive me.
      Reply to this
    • 5/9/2007 8:44 AM Julia Bytnar wrote:
      Hi Courtney, Kathy, and the rest of the family--Brad and I just want to let you know that you are in our thoughts and prayers through this difficult time. You are all a true inspiration to us by showing your love and support towards each other.
      Phil 4:13: "I can do all things through Christ who strengthens me." This is my favorite verse which I wanted to share with you. Love and Prayers
      Reply to this
    • 5/12/2007 8:49 AM Diane McCoy (L&I) wrote:
      I too feel like I am helpless and have nothing to give but love and support during this hard time. Hang on to all the memories you have and enjoy your mom for the time she is here with you. Give Kathy a big hug. Diane McCoy
      Reply to this
    • 5/21/2007 10:30 AM Matthew Carrithers wrote:
      So once upon a time, there was a new employee at a new job. A worker who had been there for a long time had lots of patience with this new employee and taught him the ropes. Often the new employee would bring challenging work to the experienced worker, perplexed about what to do. The experienced worker always had good advice, having resolved the challenging work many times before.

      Kathy, you know that I was that new employee and you were the experienced worker. You freely shared your experience with me, helping in my own transition from new employee to experienced worker.

      Well here you go again, getting more experience about things that many of us know very little about.

      Every day that you are here, sharing your life with others is a gift to us all. You matter. You touch lives. You are needed. You are important. You are loved.

      I sometimes wish that I wrote the script that says how and how long we get to stick around. I sure as heck would write it differently than it has been written so far.

      I miss you. I'm thinking of you.

      By the way, thanks to you, I learned what the heck bunco is. It was so dang-dollar fun, I joined a bunco group with my wife.

      ~Matthew
      Reply to this
    Leave a comment

    Submitted comments will be subject to moderation before being displayed.

     Enter the above security code (required)

     Name

     Email (will not be published)

     Website

    Your comment is 0 characters limited to 3000 characters.



      
    Copyright . http://KATHYSALSBLOG.COM. All rights reserved.