Kathy's ALS Blog

My Journey Since Being Diagnosed with ALS




   I was diagnosed with ALS/Lou Gehrig's Disease
        in December 2005.  To read about my initial  
    diagnosis, 
please start by scrolling to the
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Medical Update

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This entry was posted on 6/9/2007 10:17 AM and is filed under uncategorized.

Message from Courtney -

Mom wasn’t able to make her 6/6/07 appointment in Seattle. Emotionally and physically it was too difficult for her. I spoke with Sonja Zimmer, the nurse from the ALS Association and Dad was able to talk to Dr. Ravits. Dr. Ravits confirmed Mom is in the end-stage of ALS. We learned that much of her difficulty is from the buildup of CO2 from her lack of oxygen. This is causing the swelling, sleepiness, disorientation, and even her itchiness.

We have gotten her local physician, Dr. Greg Carter involved. Dr. Carter has suggested that we use more meds to keep her comfortable. Sonja encouraged this as well. Dad told Dr. Ravits he had to go to work for three days next week starting next Friday. Dr. Ravits told him he didn’t know if Mom would make it that long.

Needless to say, this is heartbreaking for us. We have known for so long what is coming, but it is always hard to hear. Dr. Ravits wasn’t able to see Mom in person to make this sort of diagnosis, but he has seen so many ALS patients and knows very well what happens near death. However, we know she may have more time, but we so appreciate his honesty and preparing us for what may come.

Please continue to hold Mom in prayer. “For where two or three are gathered in my name, I am there among them.” Matthew 18:20

 

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Comments

    • 6/9/2007 3:16 PM Jeannie Norton wrote:
      You did not mention Hospice and how they are working with you. Am sure they will be able to assist and make Kathy as comfortable as possible, plus be there for your family.
      This is such a difficult time for all. It was a year ago I faced these difficult times...knowing I would have to let go and yet wanting to clutch and hold my Mom forever. But I could not stand to see her suffer in any way. It was a horribly long journey...as has Kathy's been. I don't have any answers ... only lots of prayers and
      love from all who know Kathy and her family.
      God Bless You All!
      Jeannie & Ted
      Reply to this
    • 6/11/2007 11:28 AM Janet Nickelson wrote:
      To Kathy's family - Your Mom and I worked together for many years in Unit L at LnI - I was the bill person - not only did we work really good together concerning work issues we had some of the best talks - mostly about our husbands and kids and kitty cats. She is a good and caring person and I think about her everyday now. My prayers are with you. The strength you share gives me chills. Kathy is a special addition to this world but it seems we need to prepare to let her go.
      To Kathy - hey missy, remember that closing I had on my emails a few years ago? You thought it was so cool - I want to share it with you once again.
      "Let us be like a bird for a moment perched on a frail branch as she sings - though she feels it bend still she sings her song, knowing she has wings"! Bye Bye Missy Girl.
      Reply to this
    • 6/11/2007 10:19 PM Julia Bytnar wrote:
      Kathy--You are a true blessing and example to all those around you; as a mother, wife, daughter, sister, and friend. I pray for the Lord's comfort and peace to be with you.
      Courtney and family--You are your mother's guardian angels that the Lord has blessed her with. I am inspired by your courage and strength through this difficult time. "I can do all things through Christ who strengthens me." Phil 4:13
      My family is praying for you as well.
      Love and prayers, Julia
      Reply to this
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