Kathy's ALS Blog

My Journey Since Being Diagnosed with ALS




   I was diagnosed with ALS/Lou Gehrig's Disease
        in December 2005.  To read about my initial  
    diagnosis, 
please start by scrolling to the
                        bottom of this site.

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Finally a Grandma

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This entry was posted on 11/11/2007 10:43 PM and is filed under uncategorized.


and She's Sending Her Love Down From Heaven



Mom was so excited last Spring when she found out Corey and Keri were having a baby. As you can imagine, it was also difficult for her as the terrible disease progressed to realize she would never be here to physically hold her first grandchild. I sadly remember the words she used in a scrapbook she made for me just last Christmas: "I DO look forward to holding the babies, smelling how sweet they are, watching them grow and being a part of their lives."

On October 16, 2007, we welcomed Carson Lee Wallis into the world. I was fortunate enough to be there as this wonderful life began just as I was with my mother just a few months before when she left this world. We are sad Mom isn't with us and with Carson as we know she would like to be - but she IS a part of his life and ours. She was definitely there with us that day when he was born. As Aunt Sue said, "Court, just say hello to your Mom when you get to the hospital - because she is definitely there. You know she wouldn't miss this!"

It is so wonderful to get to experience the joy only a new baby can bring, but it does make us grieve to not have her here to share it with us. But, we are consoled to know that she is Carson's grandmother. She can't buy him outfits, babysit or brag - but she is a huge part of who he is. She can't do all those things - but we can. We will love Carson as Mom does and we will get to tell him all about her one day.
 

 

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Comments

    • 2/5/2008 4:04 PM nena wrote:
      im so sorry to hear about your loss.. my name is nena and i had seen a show on als this morning as i was tryong to take a nap. it was based on a true story, i just had to learn more so i googled a search on als and came across you and your mothers web site. you are an amazing daughter courtney and she is blessed to have had you for a daughter. i dont know about stem cell research but am doing alot of reasearch on the computer. im 37 and have a grandson that has been diagnosed with cp which is a malformation of the motor part of his brain.. he is mow 2 years old and my daughter who is 21 is also amazing ( i see you in her). she is a wonderful mother to him and deals with it very well. she devotes her life to him at such a young age and is never selfish by asking "why me". its like someone said on your website, god only gives us what we can handle. god bless you and yours and keep doing a wonderful job.
      nena
      Reply to this
      1. 2/7/2008 9:10 PM Courtney wrote:
        Thank you so much for your thoughtful response. I forwarded your note to my boyfriend, Dad, Aunt and brother as I know it would encourage them to see that Mom's story is continuing to touch others. It is an unreal thing - even to this day. I still can't believe all we've been through...

        I am glad you are there for your daughter and grandson. They are fortunate to have you!!

        I have to say - I used to believe God only gives us what we can handle. I've changed my opinion on that a bit. I now do not believe that. I don't believe God gave my Mom ALS as I don't believe He works that way. I do believe he was saddened by her diagnosis and held her in love every step of the way. I also believe He was there for us to comfort us along the way. So, that is my "deep thought" for the evening.

        Thanks again for the lovely message!

        - Courtney
        Reply to this
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