I was diagnosed with ALS/Lou Gehrig's Disease in December 2005. To read about my initial diagnosis, please start by scrolling to the bottom of this site.
Feel free to submit a comment to me whenever you visit this page.
3/9/2008 5:20 AM
Alan wrote:
Hi there, I feel like I am barging in here, I no nothing of ALS, but i just wanted to say a few words about dragonflies! My dear sister left us - it'll be ten years in November - and left a gigantic hole in our lives. I spent a long time drinking and generally feeling sorry for myself, and I basically lost a few years of life, trying to deal with her death. She was born with special needs, and died at age 32. I'm 32 now, and I have started a new life. Everything is going well, although I will obviously never forget my darling sister. What I'm getting at is this; about 18 months ago, I noticed that wehn I was alond, in certain places, a dragonfly would come along, and sort of 'hang around'. It seemed that if i tried to look directly at it, it would fly away. After a few instances, I got into the habit of just carrying on with what I was doing, and looking out of the corner of my eye, and the Dragonfly would stay for a while and then leave! i got the feeling that it was my sister comingto say hello. Since i mastered not looking directly at the dragonfly, it seems to fly right up to me, as if to say 'I'm here, it's ok'. It happens at least once a week. I just thought you might like to hear this. By the way, I am a big believer in ' the universe'. I got onto your page by googling the words 'susan sister happy smile love gone dragonfly'
2/5/2008 4:04 PM
nena wrote:
im so sorry to hear about your loss.. my name is nena and i had seen a show on als this morning as i was tryong to take a nap. it was based on a true story, i just had to learn more so i googled a search on als and came across you and your mothers web site. you are an amazing daughter courtney and she is blessed to have had you for a daughter. i dont know about stem cell research but am doing alot of reasearch on the computer. im 37 and have a grandson that has been diagnosed with cp which is a malformation of the motor part of his brain.. he is mow 2 years old and my daughter who is 21 is also amazing ( i see you in her). she is a wonderful mother to him and deals with it very well. she devotes her life to him at such a young age and is never selfish by asking "why me". its like someone said on your website, god only gives us what we can handle. god bless you and yours and keep doing a wonderful job. nena Reply to this
2/7/2008 9:10 PM
Courtney wrote:
Thank you so much for your thoughtful response. I forwarded your note to my boyfriend, Dad, Aunt and brother as I know it would encourage them to see that Mom's story is continuing to touch others. It is an unreal thing - even to this day. I still can't believe all we've been through...
I am glad you are there for your daughter and grandson. They are fortunate to have you!!
I have to say - I used to believe God only gives us what we can handle. I've changed my opinion on that a bit. I now do not believe that. I don't believe God gave my Mom ALS as I don't believe He works that way. I do believe he was saddened by her diagnosis and held her in love every step of the way. I also believe He was there for us to comfort us along the way. So, that is my "deep thought" for the evening.
12/25/2007 8:20 PM
Jeannie Norton wrote:
Moms are special any time of the year, but extra special at Christmas time.... and when they have moved to heavenly homes, we miss them so much. Am sure your Mom (& my Mom) are watching over us right now!
10/16/2007 5:52 PM
Diana wrote:
I just wanted to comment how much I could feel the love for Kathy as she fought this disease. I am a writer and came upon your site when doing research on ALS. Courtney, there couldn't have been a better person than you to have been her daughter. Seeing the people in your videos made me homesick for folks passed on in my life. The feeling of love and family, there is nothing better in life! Diana Reply to this
8/3/2007 9:32 AM
Jeannie wrote:
Dear, dear Courtney... Tears swell up when I read your letter. It is soooo hard to say goodbye and not be able to touch, laugh, cry, hold or love your Mom when she's gone. I still have flashbacks (& reading your letter reminds me over and over again). However, my one consolation is that Mom is no longer suffering...watching her suffer tore me apart...and also I feel so blessed to have had such a wonderful mother....So time does pass, it heals with the healing, but never dims the memories. Hold tight to all those precious moments you had with your Mom and some day you will be reunited with her for laugh and love again....
7/22/2007 8:01 AM
Jo Wood wrote:
My beautiful daughter, I will miss you every day. You were my sweet baby girl. The day you were born was the happiest day of my life. I will see you again. I just wish it could have been me. Then you could see your first grandchild and see Courtney get married. You were a wonderful daughter and we will miss you forever. Reply to this
7/11/2007 3:28 PM
Manon Brown wrote:
The Bunko Babes had a final goodbye for Kathy on 6/31/07. We laughed, cried, looked at pictures and at the end went outside to release the red balloons that we had all written notes to Kathy on. We held hands and prayed then released the balloons. We watched them until they just about disappeared. At that spot a rainbow appeared..... We believe she read the balloons and sent us that rainbow to let us know she was there. We will always love and miss her. Bunko Babes Reply to this
7/9/2007 1:01 PM
Michelle Hawley Barnes wrote:
Dear Courtney, I just wanted to extend my condolences to you and your family. Though I hadn't seen Kathy is quite some time, I always loved her growing up, and remembered her as one of the 'cool' moms; I am deeply saddened.
I too know what it is like to care for a parent who is slowly leaving this life, and the ways in which the experience can change who we are inside. Your strength and bravery is to be commended. Please know that my thoughts are with you.
7/5/2007 1:50 PM
Claudia wrote:
Hi Courtney and family. I have just read your blog and my heart is on my sleeve. My dad is in the last stage of ALS as well. He was diagnosed just a year ago. We have an upcoming Appt. with Dr. Ravitz for a final evaluation and will get hospice in to help. It has been a journey of great strength and pain. I understand what you have been through, and know that you can understand ours. Letting go is not easy, but his quality of life now is nothing less than cruel. Thank you for sharing your journey with us, it has helped me with some outside perspective. We will keep walking for ALS in hopes of a cure. All the best. Claudia and family. Reply to this
6/28/2007 9:33 AM
Joanne Klein wrote:
My deepest condolences to your family. I knew at the support group meeting that we were at the same place. Watching our parent go through the dying process. I know that I felt peace knowing that my Dad was no longer uncomfortable and that he was happy in heaven. I know that there are going to be rough days ahead. We just have to remember the good times and try to live our lives like they did. Doing the best they could and staying positive every day. My Mom and I wish you all the best. We are sorry we just heard otherwise we would have gone to the service. Reply to this
6/20/2007 5:11 PM
Lori Butterfield wrote:
My deepest condolences to Kathy's family. I knew her from work and I really liked her. I hope you are able to get some comfort from knowing that she is in a happier place now. Reply to this
6/20/2007 2:52 PM
Susan Haugh wrote:
Courtney, I worked with your mom in the Word Processing Unit at DSHS--About 20 years ago (I think). I'm shocked to read about her death and the illness that caused it. She was a terrific person and I wished we had kept in touch. She talked about you and Cory all the time and was so proud of both of you. My heart goes out to all of you. Reply to this
6/16/2007 8:02 AM
Sonja Zimmer wrote:
Thoughts Cherish things while you still have them, before they're gone, and you realize how precious they really are. Life can only be understood backwards, but it must be lived forwards Slowly take a single step to move forward.
You have met one of life’s greatest challenges with confidence; love and respect for your wife, mother, and daughter. The challenge of the past year and half has forever changed your future. No you did not ask for it, did not want it and certainly did not like it but you did it! Jay, Courtney, Corey and Jo you did that, you met the challenges you gave Kathy your Love support understanding, and patience, you gave her the best gift of all, yourselves. This time of grieving is yours there is no time line, no rules to follow, you are allowed every emotion that you feel. It is OK. Relish your successes don’t dwell on the failures, There is always something to learn from them. Know that she will always be with you, in your heart and soul. Her physical body has left us but her spirit lives on forever in your love for her and each other. Delight in life’s simple gifts, as she did, her love for animals, her family, friends, playing bunco. I envision her laughing talking and eating with abandon. Continue as she did to Laugh often and love much.
6/15/2007 1:56 PM
Brian Cassidy wrote:
Courtney and family, Courtney I am very saddened by the news of your mom. It has been a long time since I saw her and was unaware of her illness until reading the paper today. From what I have read on the site it sounds like the last year and a half was filled with lots of wonderful memories. Your mom was just simply awesome. Take care, Brian C. Reply to this
6/14/2007 9:22 PM
Jeannie Norton wrote:
Sweet Kathy...your battle is over...you are victorious... you have reached your destination... no longer at the foot of the cross, but now in the arms of your Savior...rest in peace now. Jeannie & Ted Reply to this
6/14/2007 9:04 PM
Julia Bytnar wrote:
Dear Courtney and family--- You are a true example of what family, faith, and love are all about. Kathy was so blessed to have you by her side until the very end; how comforting for her. We so wish we could make it to her service, but will be unable to make it due to long-term plans that same evening. Our thoughts and prayers are with you as you say good-bye to Kathy, as well as remember and celebrate what a beautiful, courageous, kind, faithful, and loving woman she was. She is now dancing with Jesus; it can't get any better than that! Love and prayers---Julia and Brad Reply to this
I am so sorry to hear of your loss! Your Mom was a great lady! You are such an awesome daughter! I know how much your Mom loved you and how proud she was of you.
You and your family are in my thoughts and prayers. I'm sending you lots of hugs.
6/14/2007 7:09 PM
Cecilia wrote:
Courtney- You and your family are in our prayers. Your mom was a very special person and she will never be forgotten. I hope that you and your family will find that strength from family memories. God bless you and yours. If I can do anything please let me know. Love and peace to you - Cecilia Reply to this
6/14/2007 5:09 PM
John Eastin wrote:
Courtney, Know that the Eastin Family has you and your family in our thoughts and prayers. You've been through some very trying times lately and you're to be commended for your personal strength and fortitude. You are an inspiration to others and we all admire your character and personal integrity more than you will ever know. Understand that everything happens for a reason and surely it was time for your mom to go home where she can breathe easy, move unencumbered and watch over you forever more. Know that we love you Courtney and our thoughts are with you. jse Reply to this
6/14/2007 12:47 PM
Elishia wrote:
Dearest Courtney and Family, I just this second read about your most special mom, Kathy. All of my thoughts, prayers, strength and love are with you during this time. If there is anything at all you need, please ask. Love to you and your family! Leash Reply to this
6/13/2007 8:33 PM
Ann Mitchell wrote:
Courtney - What a journey you and your family have had, I am very sorry for your loss. I know it has been hard for you, but as I have read this blog, I have admired you for your strength and willingness to face this illness. You are fortunate to have been with your mom right until the end, I am sure she felt better because you and your father were right there with her. I won't be able to attend the service, but I will be thinking of you and your family this weekend. - Ann Mitchell Reply to this
6/13/2007 7:34 PM
Jeannie Norton wrote:
Courtney...I thought of you all day! I wore the ALS bracelet you gave me..and prayed for you and your family. It will be one year this Sunday (June 17th) I was going through what you are experiencing now. It doesn't matter how old or young your Mom is...it's a big loss that will take a long time (if ever)to accept. Just knowing she is at peace now..no more suffering..is what has helped me in my grief. I was so distraught when I couldn't do anything to help...am sure you felt that way too. Lean on Hospice to help you and your family through the days/weeks ahead. Of course, you're greatest strength is your faith and hope of eternal rest for your Mom. What a fighter she was...and what a champion daughter you are...be at peace knowing you were the best...God Bless You Always...and prayers of comfort for your Dad who has endured so much. Love Jeannie Reply to this
6/13/2007 3:16 PM
Francesca Woodring wrote:
Courtney, Please know that my thoughts and prayers are with you and your family. God bless all of you. I know he has already blessed your Mom and she is in his loving presence. Reply to this
I am very sorry for you and your family that your Mom is no longer here with you. I am happy she no longer suffers and I hope you all find the strength in the coming days to begin to cope and heal. I feel for all of you. It's been a long difficult journey for all of you. I am so thankful you had those last moments with her. Thinking of you... Reply to this
6/13/2007 1:25 PM
Sara wrote:
I am overwhelmed by your grace and fortitude, Courtney! You are an inspiring woman! I cannot say how much I wish I were there to wrap my arms around you and pray for you at this time. Please know that even though my arms can't be there, my prayers are! I will be lifting you and your entire family before Him who's grace, peace, and comfort abounds in times of struggle. I love you with all my heart, friend. Reply to this
6/13/2007 11:12 AMKaryn Norris wrote:
Courtney and family... I am so sorry for your loss. I am, however, so thankful that Kathy is dancing in her new and perfect body with our Lord. Please know we will continue to pray for you all. We would love to bring over a meal.
Blessings to you all... Karyn and Kathy Reply to this
6/13/2007 10:10 AM
Matt wrote:
Dearest Kathy, Thank you for who you have been in all of our lives. Thank you for bringing such wonderful children into this world. Thank you for your courage and your willingness to share your journey with all of us. Dang dollar, you made a positive difference in this world for many, many folks. I am privileged to have known you. Reply to this
6/12/2007 10:48 PM
Peri wrote:
Courtney and family, My tears are with you. I am so sorry for what you have all been through, especially Kathy. My heart is also with you - the loss of someone you love so deeply is very hard. Please let me know if there's anything I can help with. Love you, Peri Reply to this
6/11/2007 10:19 PM
Julia Bytnar wrote:
Kathy--You are a true blessing and example to all those around you; as a mother, wife, daughter, sister, and friend. I pray for the Lord's comfort and peace to be with you. Courtney and family--You are your mother's guardian angels that the Lord has blessed her with. I am inspired by your courage and strength through this difficult time. "I can do all things through Christ who strengthens me." Phil 4:13 My family is praying for you as well. Love and prayers, Julia Reply to this
6/11/2007 11:28 AM
Janet Nickelson wrote:
To Kathy's family - Your Mom and I worked together for many years in Unit L at LnI - I was the bill person - not only did we work really good together concerning work issues we had some of the best talks - mostly about our husbands and kids and kitty cats. She is a good and caring person and I think about her everyday now. My prayers are with you. The strength you share gives me chills. Kathy is a special addition to this world but it seems we need to prepare to let her go. To Kathy - hey missy, remember that closing I had on my emails a few years ago? You thought it was so cool - I want to share it with you once again. "Let us be like a bird for a moment perched on a frail branch as she sings - though she feels it bend still she sings her song, knowing she has wings"! Bye Bye Missy Girl. Reply to this
6/9/2007 3:16 PM
Jeannie Norton wrote:
You did not mention Hospice and how they are working with you. Am sure they will be able to assist and make Kathy as comfortable as possible, plus be there for your family. This is such a difficult time for all. It was a year ago I faced these difficult times...knowing I would have to let go and yet wanting to clutch and hold my Mom forever. But I could not stand to see her suffer in any way. It was a horribly long journey...as has Kathy's been. I don't have any answers ... only lots of prayers and love from all who know Kathy and her family. God Bless You All! Jeannie & Ted Reply to this
6/2/2007 8:26 PM
Karen Lawson wrote:
Well darlin, we talked about this so many times at work didn't we? You and me and Lori and Heather then Travis... We have both faced this now and it looks like you will make the trip before the rest of us...but we will all follow and what a wonderful time that will be! So, if I don't see you here I will there. Take heart! He knows the plans He has for you, plans for good and not for evil. Plans to give you a future and hope! In those days when you seek Him, you will find HIM, when you look for HIM in ernest... I will see you soon my little friend and will cherish the memories... Reply to this
6/2/2007 7:55 AM
Julia Bytnar wrote:
Dear Kathy, Courtney, and the rest of the family-- We appreciate your updates and are praying for you daily. May the Lord's strength, comfort, and peace be with you all. Love always-- Reply to this
6/1/2007 3:09 PM
Jeannie Norton wrote:
Dear, Dear Courtney & Kathy...Only wished we were closer so we could help.. hug..and just be with you during this difficult time. The journey has been so long and the only saving grace is that she is not in pain. Hospice, Of course, will make sure that she is not in pain...but how helpless we feel. No rhyme or reason for what happens to us on this planet...can only trust some day we will have the answers. Be strong, dear ones, and know you are loved by many. God bless you always! Jeannie & Ted Reply to this
5/31/2007 11:38 PM
Peri wrote:
Wallis family, You are in my thoughts and prayers more than you know. I so enjoyed seeing you Courtney! Remember to concentate on the blessings in your life.
Kathy - stay as strong as you can each day. I know you know how many people are with you in this journey, even those you don't know very well.
5/21/2007 10:30 AM
Matthew Carrithers wrote:
So once upon a time, there was a new employee at a new job. A worker who had been there for a long time had lots of patience with this new employee and taught him the ropes. Often the new employee would bring challenging work to the experienced worker, perplexed about what to do. The experienced worker always had good advice, having resolved the challenging work many times before.
Kathy, you know that I was that new employee and you were the experienced worker. You freely shared your experience with me, helping in my own transition from new employee to experienced worker.
Well here you go again, getting more experience about things that many of us know very little about.
Every day that you are here, sharing your life with others is a gift to us all. You matter. You touch lives. You are needed. You are important. You are loved.
I sometimes wish that I wrote the script that says how and how long we get to stick around. I sure as heck would write it differently than it has been written so far.
I miss you. I'm thinking of you.
By the way, thanks to you, I learned what the heck bunco is. It was so dang-dollar fun, I joined a bunco group with my wife.
5/19/2007 6:45 AM
Sandy Prock wrote:
My heart and prayers are with you, your mother and your family. With love, Sandy Reply to this
5/13/2007 11:20 AM
Jeannie Norton wrote:
Kathy...you are so beautiful and such a champion. Blessings to you this special Mother's Day. You have given the world two very special gifts...your wonderful children! May God continue to bless you and your family. Love Jeannie & Ted Reply to this
5/12/2007 7:45 PM
Jeannie Norton wrote:
How wonderful to reunite with your team, Kathy! Looks like a great group of colleagues who love you. Reply to this
5/12/2007 8:49 AM
Diane McCoy (L&I) wrote:
I too feel like I am helpless and have nothing to give but love and support during this hard time. Hang on to all the memories you have and enjoy your mom for the time she is here with you. Give Kathy a big hug. Diane McCoy Reply to this
5/9/2007 8:44 AM
Julia Bytnar wrote:
Hi Courtney, Kathy, and the rest of the family--Brad and I just want to let you know that you are in our thoughts and prayers through this difficult time. You are all a true inspiration to us by showing your love and support towards each other. Phil 4:13: "I can do all things through Christ who strengthens me." This is my favorite verse which I wanted to share with you. Love and Prayers Reply to this
5/8/2007 7:59 PM
cindy m wrote:
Dear Kathy - i think of you every day. i am so sorry. ALS sucks! how can i help? what good am i? crap - this is about you. i don't even know what to say. nothing will be enough. too little, too late. scared. please forgive me. Reply to this
Talea reassured me if I wrote to you it would not be an intrusion. I worried about that.
I want to introduce myself to you Courtney. I am Sandy Prock, Brads sister and your aunt.
I have wanted to contact you since Talea told me she had a sister when my husband and I were visiting in Olympia and attending Jordan's senior high football game.
I hope this is not a bad time, but I have been keeping up with your updates and I was so sorry to hear your mother is not doing to well in your last post. My prayers are with you, your mother and family.
If you feel like writing when you have time, my email address is sandyprock@yahoo.com. I know you are busy now with your mom and all. I just wanted to touch base.
4/26/2007 8:02 PM
Jeannie Norton wrote:
Am so glad Hospice is there to be with all of you. They are incredible and provide such an invaluable service and support during these difficult times. Know that you all are in our thoughts and prayers. So difficult to know what to say or do, but only to let you know our arms are outstretched and we hope you can feel our hugs of love and blessings. God Bless You Always! Jeannie & Ted Norton Reply to this
4/26/2007 7:44 PM
Jody Pyatt wrote:
Dear Kathy, I think about you often. We made it through Pat's Mom's hospital stay. They say they got all the cancer, but she lost nearly a quarter of her tongue. I've been waiting for you to text that your ready for visitors. We would love to come say Hi! and pet the animals. Thinking of you often. love, Jody Reply to this
4/22/2007 9:56 AMKaryn Norris wrote:
I am continually praying for you, Kathy, and your wonderful family. I have a lot of fond memories of growing up with Courtney and seeing you at all of our events. Thank you for being such an inspiration! God Bless you and your family. Reply to this
4/17/2007 9:36 PM
Cecilia wrote:
Courtney -- You are a true angel. I can only pray for family and hope you will let me know if I can do anything. And, pray that if I become ill in my lifetime that my daughters will be as generous, kind and caring as you. My thoughts are always with you and your family. Reply to this
4/14/2007 7:07 PM
Jeannie Norton wrote:
Dear Kathy & Courtney... What a team you two are ... of course must include the wonderful support you're getting from the guys too! Kathy, you are truly an inspiration of hope and strength for all of us..and how blessed you are to have a Guardian Angel, Courtney, to be by your side. May God bless all of you during this tough journey. Love.... Jeannie & Ted Norton Reply to this
3/15/2007 6:43 AM
Joanne wrote:
Hi! This is Joanne, Gary Kleins daughter. I am happy to hear someone else that can go through this horrible disease but still focus on the good in live family and friends. can you have courtney e-mail me. We are both daughters going through the same thing. Thanks, and God Bless Reply to this
3/1/2007 9:03 PM
Diane McCoy wrote:
I was really hoping to see more of the guys...Kathy I am so happy that you have such a great support system and that your spirits are so high. I remember when I talked to you after work shortly after you were diagnosed and how pissed off I was...you told me not to be, because you have the opportunity to be with your loved ones and make the time you have, the best that you can. It doesn’t look like your attitude has changed. I need to send my letter to the gov about the retirement issues we talked about. I do think of doing it often and know I’ve let you down because I haven’t pursued that. I think of you often and hope a miracle will happen and you will be well again. Have a ball at Corey’s wedding. Courtney…hurry up so mom can go to your wedding too. Reply to this
2/28/2007 4:42 PM
talea wrote:
hey kath... it was REALLY nice to see you last weekend. i had a great time visiting you and your doggy!!! sorry you were not feeling well. lets plan on going to see the movie soon, whenever you are feeling 100% again...or close to it anyway ;0)
i looked through the pics. of you guys in vegas. my favorite one is when you are watching the dancers on the stage from your chair, Courtney explained to me that the funny part is that you were rocking back and forth to the music. when i look at the picture i can just imagine you having the time of your life down there and living life to the fullest...something i am really glad you are doing. I LOVE YOU!!!! Reply to this
2/12/2007 2:26 PM
Gary Klein wrote:
Sorry to hear the disease is progessing rapid. I was at the ALS clinic on the 24th, also the first time in a wheelchair. Did you have a tube put in? If not you should ASAP. I found the most information ladden site where you can ask questions with others that have been thru similiar experinces. http://www.alsforums.com/
I am praying for you. This disease truly sucks big time. Be proud that you have the support of your family and extended family. Love is contaigous. time is precious to both of us, may you enjoy fully your family and friends love. Gary Courtney; How are you doing? Reply to this
2/3/2007 12:46 PM
Peri Smith wrote:
Kathy, Your spirit is truly an inspiration! You and your family have been in my thoughts and prayers a lot lately. I wish you all peace and comfort in your journey. Reply to this
11/9/2006 4:06 PM
Velvet Jauken wrote:
I just wanted to say that I love you and you are often in my thoughts!!
10/26/2006 8:19 PM
Sara Edwards wrote:
Looks like you all had a great time! Wish I could have been there. I'll plan on it for next year, though.
Kathy, how blessed you are to have such a supportive family who loves you so dearly! Reply to this
9/7/2006 4:53 PM
Jeannie and Ted Norton wrote:
So good to see Courtney and meet her friends who are helping Kathy. What a fun, successful event! Hats off to all who helped make it possible...and particularly to our star, Courtney, who continues to amaze all of us. Kathy must be so proud!
8/16/2006 11:17 AM
Manon wrote:
Hey, I played Bunko with Kathy last Friday and I thought she looked fabulous! I wish she lived closer so I could see her more. We are now trying to locate a good housekeeper for her and arrange meals for her family (if she wants). I have continued to have her on a prayer chain and I encourage everyone else to do the same or just pray yourself. I wish she would be more forthright in telling us what we can do for her, but I know this is difficult as she is a very self reliant lady. (Hint Kathy!!)
Much love to her and her wonderful family and as always the Bunko Babes are here for them.
You are such a brave lady and inspiration to all of us. I hope you know how many of us are rooting for you across the country...! Coincidentally, tomorrow we are having a presentation at our Kiwanis meeting by the ALS Chapter in Spokane. I'm looking forward to learning more. Please give that wonderful daughter of yours a big hug from me and have her hug you in return. You are very blessed to have her!
7/29/2006 11:48 PM
Julia and Brad wrote:
Happy Birthday, Kathy!! Thank you for sharing your birthday video with us all---looks like you had a wonderful party with your family and friends. You are in our thoughts and prayers. If you need anything, feel free to ask us.
7/12/2006 8:01 PM
Lorie Mitchell wrote:
It was a good decision for you, Kathy, to take this time to retire and enjoy life to the very fullest. Although I can say I miss not seeing you as often dearly, I know it is much better for you to spend as much "quality" time as possible doing the things that you have dreamed about. You will always be a treasured and a dear friend to me. If at any time there is ever anything I can do, no matter how big or small, you know all you have to do is let me know and I will be there for you! I sincerely mean it. You are in my prayers daily and I wish nothing but the best for you and your family.
Wished we were closer we would have oodles of goodies for this event. We just did a two-day "Living Estate Sale" and had lots of stuff leftover. Now I know why I don't like garage sales.... How about if I just donate $$ toward this event to help with the facility rental or whatever is needed? I'll just send to Courtney! Best of luck on this special event!
5/30/2006 3:23 PM
Velvet Jauken wrote:
I was looking up some good words to use and I found an interesting internet site that gave you the definition of words and went from the shortest word with that meaning to the longest word that had the same meaning. So, I thought I would send you some of the words I found that made me think of you. Plus, they are really long!!! One word is 16 letters long.
Definitions of valiance:
• noun: the qualities of a hero or heroine; exceptional or heroic courage when facing danger (especially in battle)
Definitions of stoutheartedness:
• noun: the trait of having a courageous spirit
Definitions of dauntlessness:
• noun: resolute courageousness
What I thought would be good for Aunt Kathy would be "Courageous Kathy" or "Valiant Kathy". I couldn't think of anything else. I asked everyone in my office if they could think of anything but they couldn't. Love you and talk to you soon.
Sorry I haven't contacted you earlier! This website is certainly a tribute to you and is a wonderful way to express it in the computer age.
I too started to discover lettuce was a no, no. If you cut up meats really small that will work, and you will naturally like softer food, like cakes and things (I love Tsimui from Costco).
Sounds like you are doing well and not letting it getting you down kept at the keyboard and let me know what works. I suspect I will need it.
By the messages of support and love on this site you have been an extraordinary person who has been a blessing to many others.
Best wishes as you tackle this disease. Perhaps lunch? I make a mess but then you know the reason.
Many prayers are being said on your behalf. Be sure of mine for you as well. Remember that you are in the palm of God's hand, and He can lead you to a safe and beautiful place. Fear not - He is strong and able to see you through any challenge. Rocky roads lead to the most beautiful places.
I'm sure we will meet someday as I work with Courtney. Until then - May the Lord bless you and keep filled with His supernatural joy.
5/26/2006 5:26 PM
Julia Bytnar wrote:
Courtney---Thank you for your updates on your mom. They help in letting us know how to specifically pray for all of you.
Kathy---Through Courtney's updates, it is so apparent that you are truly blessed to have such a supporting network of friends and family who love you. And it all stems from how you have been and still are a true blessing to us all, each in its own way. I have been inspired by your courage and strength. If I can do anything to help in any way, please let me know.
I got Courtney's update on your progress today. Sorry to hear that Peru is off the table for now but am glad that 'Road Trip America' is still in the cards.
I took time to look through the blog (my first real blog experience ever - thank you for dragging me further into the computer age! How blessed you are even in this troubling time to have such a great family around you. Of course seeing Courtney (who I have known for gosh 9 or 10 years now) it doesn't surprise me - she was always an angel and I figured she must have come from good, loving stock. Seems I'm right.
I'm so sorry that this is happening to you and your family and life is certainly full of surprises. I trust your faith will help you find meaning even in this trial.
You are strong inside and out. I admire your stregnth. You have comforted friends and family in your time of need and that says a lot about who you are as a person.
You have a lot of love around you and know that I think about you and pray for you daily. I love you lots!!
If you need someone to talk too I am here for you!! That includes anyone in my family!!
I just wanted to say hi and make sure you know that I am thinking about you and praying for you often. It is wonderful to be able to get updates, see pictures and share a bit from so far away. You and your whole family and friends are amazingly strong and supportive - it is wonderful to see. You have more people then you know supporting you in lots of different ways. Please know that my prayers are always with you and your family and that I appreciate the education you are giving me through what you are having to go through. Take care and let me know if there is anything specific I can do for you.
Love,
Carin Seppa, Courtney's friend from Whitworth Reply to this
5/21/2006 10:00 PM
Salina wrote:
Hello Kathy, sorry I wasn't able to see you when you came up to Seattle. I really loved our day at McCormicks and enjoy your company. Call or email me anytime, I hope to have more time in the summer once school has ended. I love you and think of you often. Take care, I will see you soon.
5/21/2006 7:42 PM
Jeannie Norton wrote:
Hi Kathy & Courtney... Loved getting updated & have you in our prayers. You are a great duo with lots of friends who want to support. Keep me on board with details...wished I was closer...but here's a BIG HUG & Love
5/21/2006 7:18 PMSara Edwards wrote:
I have been hearing about you from Courtney, thinking about you lots, and praying for you often. I hope your heart and home are filled up with warmth from the sunshine of friends' love. I hope your life is filled up with the abundant blessings of God! Reply to this
5/21/2006 6:09 PM
Roxanna and Ron Shively wrote:
We think about you a lot and your family. Courtney has kept us updated. Hope you have been enjoying the warmer weather. Of course, it's changed again already, but hold on, cause it will change again and we will see the sun. Reply to this
5/10/2006 8:40 AM
Jo Wood wrote:
Hi Kathy, this is your mother just to say I love you very much. Stay focused. If I can I want to take you to the ocean. Soon as my ship comes in. Reply to this
I spoke with your daughter today at work. She said to me that God doesn't give you more than you can handle. I agree with her on that point. He also doesn't call us to a place that is not predestined by Him. God is all knowing, all powerful and all loving. He is there for us in our joy and our sorrow. This has also been a hard year for my family. We have been taken to the edge and back again. Yet through it all His Grace is sufficient. Mother's day is just around the corner and when I looked into your daughter's eyes today (as she spoke of you) I got the chance to see your greatest accomplishment. You have created a wonderful daughter. Your love shows in her. My prayer for you is that you will not focus on the illness you have, but on the promises you have to leave to your children and the relationship you have with Him. Only God knows when we are to take our last breath. He only asks that we know Him. That we spend our lives seeking Him. Know that there is a better place awaiting each of us. It is His will to heal you whether it is on this side of Heaven or in Paradise. Rest in Him.
My prayers are with you and your family. God bless each of you.
4/15/2006 1:29 AM
Talea wrote:
Hey Kath, just checkin in to see how you are doing? I am doing fine. Hawaii finally started to see some nice weather. i have only one month before i come home. You, grandma, courtney and i will all have to go out for lunch or dinner together. i wish i could have been there for the birthday party but the pictures looked like you had tons of fun anyway. i hope you are feeling well and i wish you a wonderful day! love, talea Reply to this
Just wanted to take a moment to say Hello and let you know again how much my daughter and I enjoyed our holiday shopping trip. We were both so surprised by your diagnosis and I know that it has been particularly hard for you, when you were hoping for a better outcome to your symptoms. I'm here anytime you would like to talk, share something that happened in your day, discuss how Courtney is dealing with things or how you are dealing with things. Also, I can be of some assistance if you have questions about your retirement or about your workplace benefit options. Take care and I'll see you soon. Courtney needs to have another party!
This is to let you know you were a wonderful delight when you were born AND I LOVE YOU VERY MUCH. My heart is heavy with sorrow when there is nothing I can do to help. But I will always be there for you. Life is not always good but we need to thank God for all the wonderful times we have had together. And your brother is a jerk sometimes but he does LOVE you. Just keep your head up and get through this one way or another. You know I always wanted a girl and God blessed me with the best. I LOVE YOU.
I wanted to tell you that I love you very much. I have always felt a close connection with you. You have always been someone that I can talk to and know that you wont judge me or think ill of me.
When I was told of your illness I cried very hard and it was hard to come to terms with. Every time I think of it I have to stop myself from crying.
It was hard for me to call you because I didnt know the right words to say and I was scared. I had left you some messages on your machine.
Today Courtney called me and told me about your web site and that you wanted her to talk to me because we would have trouble understanding each other if you had called me back. My quiet voice and your hearing and slurred speech (the last two words was hard to write, I just want to blot it out).
Aunt Kathy, one of my favorite memories is when you took me to your work on Take your Daughter to work day, except I was your niece !! I had so much fun spending the day with you. Learning what you did there and eating lunch with you. I also remember the time when Courtney and you took me to a concert in Puyallup. I dont remember the actual band that played but it was fun!!! I know that it was a boy band!!
Just know that I love you and if you need someone to talk to I am a good listener!!!
3/28/2006 9:53 PM
Cindy M wrote:
hi Kathy! thank you for the e-mail about your life. i loved reading about you. this site is cool. i couldn't open it the other day so waited to try again. if i break my computer i'm screwed cuz i know nothing. my husband was the smart one. i am really impressed that you are still working full time. don't you sometimes just want to shuck it all and go to a warm beach? sit in the sun without a care? what do you do? manage claims? i worked at L & I a hundred years ago. wasn't there long so don't try to remember me. had to take yesterday afternoon off (in all that sun) to play with my grandson. his mom went for a root canal. we had a great time. he makes me laugh. i beat him at slug-bug. that's not easy cuz he cheats. he helped me load up at the grocery store on jello cups-big surprize. no one is home tonite except me, 2 cats and the dog. tv on for noise-how depressing-a show about the Hope Diamond is on and i likes diamonds. maybe i'll see it someday. i can dream. i am going to eat a chocolate fudge ice cream bar soon; no maybe i'll walk to Ralph's and get double coated malted milk balls-these are good. i watched Oprah yesterday about women's heart disease and o dear - before the show ended, i was on my bike for 40 minutes. what a lazy ass i have become. if i walk the 5 blocks to Ralph's though... naw, it's too dark and cold. any excuse will do. if i was supposed to write a certain way, please forgive me and instruct me for future comments. i can do it if i know the rules. guess that's why this is hard for me now-the rules state that if you work hard, you get paid and i want a different payoff. i am going to make chili for you and your family. it's my mom's recipe. i'll deliver it and we'll meet. then you can put a face with the stupid e-mails you get from me. if i can do anything else for you, say so. i'm willing and have time usually. take care, cindy if you get this twice it's cuz i'm computer illiterate Reply to this
My name is Anna and I work as a health/fitness instructor at St Peter Hospital (where Courtney takes aerobics). I just wanted to tell you how courageous you are for battling ALS with such a fierce spirit. I know that it must be incredibly difficult to face life each day. Thank you for being willing to share your story. Please know that you are in my thoughts and prayers. I also wanted to let you know that you have a wonderful daughter! She is so kind and I enjoy seeing her at aerobics. Take care and I will try to pass this blog on to others.
